An update might be hard because the tremors in my right hand are through the roof. But here goes…
It was a hard and emotional day. I made an attempt to get out of the bed and into the chair with Keith’s help, and I did but it was hard. My knee and my quad have decided to stop working even after a successful walk three days ago.
I can bend them, but they can’t bear weight. It feels like my quad and knee are going to explode. I want to be able to stand and transfer from the bed to another bed, or from the bed to a chair, but the weight bearing problems aren’t letting me do that. Discouraging.
They have increased my dose of steroids. Last night I had two MRIs and a CT. I have attentive doctors who listen and are kind. They are each working their own angle and trying to solve all these problems.
Let’s talk about brain surgery…
We got the good news a few days ago that it may still be on the table, and I may be able to actually have it before leaving the hospital. This was amazing news to us.
Now, we are hearing that brain surgery may not be in order just yet. We have been trying to get everything right, and are confounded by this.
That’s a whole discussion that I’d love to have with you. But I’m not sure my shaky hand will let me include everything at length in way that makes sense.
Trust me when I say we are doing research, asking questions, and pushing to figure out how we can get the brain surgery going.
I really just want to go home with a clean slate and start anew, treating the “smaller” things that are lingering and not have any big things lingering.
Silver linings…
I am surrounded by very smart people who help me make sense of things.
Keith continues to be an angel.
I get to drink milk now.
Then Keith brought me a Chik-Fil-A frozen coffee today. (If you have not had one yet run, don’t walk.)
My bed is very comfortable.
We’ve made lots of friends among the staff, from the sanitation crew to the nurses. We know them by name, and they come by to visit us, even if we’re not on their rotation.
And, Y’all, I got poop! Yeee hee.
I cried a lot today. My mind and emotions were twisted, and every thought seemed to have me switch from one thing to another quickly, none of it ever with any clarity or sensibility, which is exhausting for Type A peeps like me who like being decisive and knowing.
Tonight I hope I get rest. That’s not been really a problem. I’ve been able to get good rest, but every night, I feel compelled to pray for it.
But I’m going to go, because right now, my heart monitor is through the roof, screaming and beeping, thinking I’m being overexerted by typing on my phone… either that, or there’s about to be an air raid. *so loud*
I love y’all.
#powerinthepurple
#graceanddignity
#prayformsa